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September 18, 2024 - March 4, 2025
September 18, 2024 - March 4, 2025
You can watch the series by clicking on the following link: https://www.aidanlab.ca/neuroaffirming-speaker-series
October 30, 2024
October 30, 2024
September 17, 2024
September 17, 2024
September 5-6, 2024
September 5-6, 2024
The aWARE tool is a web-based project led by the Division of Extramural Research and Training (DERT) and the Division of Translational Toxicology (DTT). Its purpose is to address the challenge of understanding environmental contributors to autism spectrum disorder (ASD) by creating an interactive and visual tool to explore environmental ASD studies.
The aWARE tool aims to comprehensively aggregate and characterize data from published research on associations between environmental factors and ASD, using a systematic evidence map (SEM) approach. Based on their interest, SEMs allow users to identify and display relevant information from published studies to gain greater understanding or inform research decisions. Prior to tool development, listening sessions engaged the broader autism community to gather perspectives.
The upcoming two-day workshop introduced a test version of the aWARE tool to get input on its development. Discussions covered project objectives, scope, technical aspects of the tool, and user experiences, aimed to create a valuable resource that resonates with diverse perspectives within the ASD community.
For more detailed information, you can refer to the research article titled “Becoming aWARE: The Development of a Web-Based Tool for Autism Research and the Environment” (DOI: 10.3390/jox13030031).
June 6, 7, & 11, 2024
June 6, 7, & 11, 2024
This virtual workshop will bring together diverse perspectives from multiple disciplines to explore advantages, barriers, gaps, and opportunities in the future of scientific conferencing for the behavioral and social sciences. Areas of particular focus will include technological innovations that enable virtual and hybrid approaches, and the impact of these approaches on diversity, equity, inclusion, accessibility, and belonging (DEIAB) of participants and attendees as well as environmental sustainability. The workshop will incorporate innovative evidence-informed approaches to showcase the potential of a virtual platform for learning, networking, and participant engagement. Overarching aims are to facilitate interdisciplinary communication and networking, to identify cross-cutting scientific gaps regarding the role of behavioral and social science factors in scientific convenings, and to inform practical strategies for designing effective, engaging, and sustainable scientific conferences and meetings.
This workshop is open to all interested individuals, including individuals from outside the NIH.
Day 1 (June 6) of the workshop will focus on DEIAB and environmental sustainability of scientific conferences. In between the two workshop days, the Engagement Day (June 7) will feature virtual poster presentations, small group discussions, and networking opportunities. Day 2 (June 11) of the workshop will focus on connection, engagement, and innovation in scientific conferencing.
Individuals who are interested in submitting an abstract for the virtual poster hall should visit this link for submission and eligibility criteria and to submit (deadline: May 19): https://www.labroots.com/ms/virtual-event/future-scientific-conferencing/abstracts.
Closed captioning will be available for the event. Individuals with disabilities who need reasonable accommodations to participate in this event will have the opportunity to provide this information during the event registration process. Requests for reasonable accommodations should be submitted at least five business days before the event.
May 29, 2024 @ 1:00pm - 2:00pm (Eastern Time)
May 29, 2024 @ 1:00pm - 2:00pm (Eastern Time)
Join us for an empowering online panel featuring autistic AAPI self-advocates as they share their inspiring journeys and self-advocacy experiences. Discover how these incredible individuals have navigated the intersections of their cultural heritage and autism, and how they use their voices to drive change and foster understanding.
Reserve your spot at https://events.humanitix.com/host/ambivcollective.
May 28, 2024 @ 3:00pm - 4:15pm (Eastern Time)
May 28, 2024 @ 3:00pm - 4:15pm (Eastern Time)
About Event
Join us for "Neurodivergent AANHPI Narratives | An AANHPI Heritage Month Panel". This panel brings together neurodivergent people from the Asian Americans, Native Hawaiians, and Pacific Islanders (AANHPI) communities to share their unique stories, challenges, and successes.
Recognizing the importance of awareness and addressing stigma, this event aims to highlight the diverse experiences and perspectives of AANHPI neurodivergent individuals. Through their stories, we seek to foster a deeper understanding and create a more inclusive community.
Featured panelists:
Eugene Yao @adhdfounder (he/him)
Kiwi Chinese | ADHD
Eugene is an ADHD content creator who rapidly expanded his Instagram to 700k followers in just five months, reaching over 50 million unique accounts across his platforms, with a mission to make people feel less weird and lonely with their symptoms. Previously, he was an entrepreneur who founded multiple start-ups, including a SaaS tool that helped over 1,500 brands with organic marketing.
Dr. Jenny Mai Phan, PhD (she/her)
South-east Asian | Autism
Dr. Phan is a Research Postdoctoral Fellow at the Center for Autism at Children's National Research Institute and Children's National Hospital. Her research investigates the experiences of neurodiverse youths, with a focus on the intersection of puberty and mental health. An acclaimed advocate for autism, Dr. Phan diligently works to address the needs of marginalized groups such as Asian Americans, autistic women, and gender-diverse youth. She champions the importance of comprehensive sexual health education and robust self-advocacy strategies for autistic individuals.
Farah Jamil, MHA, CEC, CALC, ACC (she/her)
South Asian | ADHD
Farah Jamil is an Executive and ADHD Coach & Founder of Muslim ADHDers, leveraging her Ivy-League education and over 15 years of global leadership experience in sectors including government, non-profit, and academia. She is a recognized leader and speaker, having presented at notable events such as the World Business and Executive Coaches Summit (Coaching.com) and the ADHD Paloozas (Women’s, Parents, & Couples), focused on enhancing neurodiversity awareness and leadership development. She’s extremely passionate about serving the underserved.
Jemarc Axinto (They/She/He)
Filipinx | ADHD
Jemarc Axinto is a Filipinx, Nonbinary, Trauma Recovery Coach and Wellness Consultant that supports others in their journeys at the intersection of science and spirituality. They have dedicated over ten years of their life to the actualization of a mind, body, spirit balanced no longer withheld by trauma, labels, and roles. They have had the honor of consulting and offering programming for Harvard, Rowan Medical School and many more nonprofit and for-profit organizations around the world.
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Moderating host:
Christal Wang, ACC—in progress, MBA/MPH—on pause (she/her)
Chinese-Canadian | ADHD
Chris (Christal) Wang is the co-founder & CEO of Shimmer. Chris strongly believes in using business as a force for good, and her work at Shimmer has been recognized by Forbes 30 Under 30 and Inc. Female Founders. She is deeply invested in advocating for and supporting various communities she’s a part of, including LGBTQ+, AAPI, women, and neurodiverse.
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This event is a collaboration event co-hosted by:
Shimmer is an ADHD coaching platform and community dedicated to supporting neurodivergent adults in reaching their full potential.
AMBIV Collective is a social impact agency that empowers disability and neurodivergent communities to live a meaningful and fulfilling life with research-powered support and community-led solutions.
Asian Americans with Disabilities Initiative (AADI) is a youth-led nonprofit organization aiming to uplift disabled Asian American voices.
Asian Mental Health Project is a nonprofit organization with the mission to educate and empower Asian communities in seeking mental healthcare.
Cold Tea Collective is a media platform and community, sharing the real stories, perspectives, and experiences of the next generation of the Asian diaspora.
Yellow Chair Collective is a culturally responsive and inclusive mental health education and service practice dedicated to serving the BIPOC and Asian American communities.
Entwine Community is a non-profit organization committed to bridging the gaps in culturally responsive and accessible mental health services for Asian American communities.
March 15, 2024 @ 6:00pm - 8:00pm (Eastern Time)
March 15, 2024 @ 6:00pm - 8:00pm (Eastern Time)
Join me as I talk to a Boston-based Vietnamese Parent Autism Support Group about Stress and Autism.
Recording of the talk can be found on Vòng Tay Cha Mẹ Việt Faceboook page.
March 11, 2024 @ 1:00pm - 3:00pm (Eastern Time)
March 11, 2024 @ 1:00pm - 3:00pm (Eastern Time)
ISPNE is hosting a webinar series on hormone research led by the early career researchers committee. If interested, please register at ispne.memberclicks.net/events.
Steroid Hormones: From Collection to Analysis
Webinar Series: 12 PM Central Time
$15 registration fee
2-hour live webinars
For any academic level
ISPNE membership NOT required
Recorded webinars available for attendees
Webinar 1: Best Practices for Choosing Biomarkers: Research and Collection Considerations
led by Dr. Shannin Moody on October 9, 2023 on Zoom
Webinar 2: Diurnal Cortisol: Data Management and Statistics
led by Dr. Yanping Jiang on January 8, 2024 on Zoom
Webinar 3: Reactive Hormones: Data Management and Statistics
led by Dr. Jenny Phan on March 11, 2024 on Zoom
Webinar 4: Graphing and Modelling Diurnal and Reactive Hormones
led by Dr. Elizabeth (Birdie) Shirtcliff on June 10, 2024 on Zoom
You can watch the full recording of the talk by clicking on the link here:
GMT20240311-170644_Recording_1920x1080.mp4December 4, 2023 @ 7:00pm - 8:30pm (Eastern Time)
December 4, 2023 @ 7:00pm - 8:30pm (Eastern Time)
Improving education for autistic students in Montgomery County, Maryland
Improving education for autistic students in Montgomery County, Maryland
Hosted by the xMinds BIPOC Committee
"People of the Global Majority Discussion Group - Special Presentation Dec. 4 ONLY - Stress on the Spectrum"
"People of the Global Majority Discussion Group - Special Presentation Dec. 4 ONLY - Stress on the Spectrum"
Date: Monday, December 4th, 2023
Future Dates: This is a continuing monthly discussion group with occasional speakers. The next discussion group will be on January 8, with no guest speaker. This group meets the 1st Monday of every month, with adjustments for holidays.
Time: 7:00 PM – 7:45 PM Only on Dec. 4, we will meet from 7 to 8:30pm because we have a special guest speaker.
Location: Virtual (register to receive your Zoom link)
Cost: Free
The holidays are upon us. For our families, this can sometimes be a very stressful time of year. On December 4 at 7 pm, Dr. Jenny Mai Phan, a postdoctoral researcher at Children's National Hospital in the Center for Autism Spectrum Disorders, will join us to talk about identifying and managing stress in autistic children --- a growing field of study. Specifically, she will address topics like:
How to identify causes of stress in children and teens on the autism spectrum
How might stress look differently in autistic children compared to neurotypical children
The impact of stress on young people's physical and mental health
How to work with your child to overcome feelings of stress in their everyday life
Dr. Jenny Mai Phan is a postdoctoral researcher at Children’s National Hospital in the Center for Autism Spectrum Disorders. Dr. Phan has over a decade of experience in stress and hormones research and combines this expertise with studies on puberty and mental health research in autistic youth. She is a mother of four, three of whom are diagnosed with various intellectual and developmental disabilities, including autism. Dr. Phan calls her family “very neurodiverse.” Dr. Phan is a longstanding autism community advocate and recently an autism self-advocate, as a late-diagnosed woman. She brings both lived experience and professional perspectives to her advocacy work, aiming to reduce disparities, especially in marginalized communities. Dr. Phan has a B.S. in Psychology from the University of New Orleans and a M.S. and Ph.D. in Human Development Family Studies from Iowa State University. You can learn more about her at www.jennymaiphan.com.
People of the Global Majority is a discussion group for MoCo parents/guardians of autistic students who are Black, Indigenous, and People of Color (BIPOC), hosted by the xMinds BIPOC Outreach Committee. Daria Hall, chair of the Committee will facilitate. Guest speakers are often invited to provide information of interest to parents of autistic children. Individuals who are not BIPOC are always welcome to join our discussion group when we have a guest speaker.
You can watch the full recording of the talk by clicking on the YouTube link here: xMinds presents "Stress on the Spectrum"
November 3, 2023 @ 1:00pm - 2:30pm (Eastern Time)
November 3, 2023 @ 1:00pm - 2:30pm (Eastern Time)
Association for Behavioral and Cognitive Therapies Convention
Association for Behavioral and Cognitive Therapies Convention
Autism Spectrum and Developmental Disabilities Special Interest Group Virtual Pre-Conference: Creating Sustained Co-production Partnerships within Autism Research and Practice
Autism Spectrum and Developmental Disabilities Special Interest Group Virtual Pre-Conference: Creating Sustained Co-production Partnerships within Autism Research and Practice
Panelists:
Sandy Magaña, PhD & Nelsinia Ramos, MS,
Laura Anthony, PhD & Donnie Denome, MPH,
Dena Gassner, MSW, PhD candidate & Becca Lory Hector, BA
Moderator:
Jenny Mai Phan, PhD
Register: https://asdd-sig-registration.cheddarup.com
Please contact asddsig@gmail.com with additional requests.
September 11-15, 2023 @ 12:00pm - 4:45pm (Eastern Time)
September 11-15, 2023 @ 12:00pm - 4:45pm (Eastern Time)
Learn more on the Autistic Self Advocacy Network's page.
Autism Research for Us: Creating an agenda led by the autistic community
Autism Research for Us: Creating an agenda led by the autistic community
ASAN and the Policy and Analytics Center (PAC), based at A.J. Drexel Autism Institute at Drexel University, will hold a symposium about autism research. Autistic people will tell researchers what we want and need from future research. Together we will create a plan for research and share it with everyone. Autistic people will lead the plan. We will talk about how we do research.
We will focus on participatory research. Participatory research is when the autistic community and researchers work together to design, do, and share research. We will also look at research led by autistic people. We especially want to hear from multiply marginalized autistic people, including:
• Autistic people of color;
• Non-speaking autistic people (both full time and part time);
• Autistic people who are LGBTQ+. LGBTQ+ stands for lesbian, gay, bisexual, transgender, queer, and other marginalized sexual orientations and gender identities; and
• Autistic people with intellectual disabilities.
April 2, 2023 @ 10:00am - 1:00pm (Eastern Time)
April 2, 2023 @ 10:00am - 1:00pm (Eastern Time)
United Nations World Autism Awareness Day 2023
United Nations World Autism Awareness Day 2023
Transformation toward a Neuro-Inclusive World for All
Transformation toward a Neuro-Inclusive World for All
Organized by the Institute of Neurodiversity (ION)
Organized by the Institute of Neurodiversity (ION)
You can watch the four-part live stream on YouTube (links provided below).
Part 1 Home http://bit.ly/40Spjab
Part 2 Arts http://bit.ly/3GbDvTw
Part 3 Work http://bit.ly/3U0FCPX
Part 4 Policy & Advocacy http://bit.ly/3K2nYqA
August 5, 2022 @ 1:00 - 1:50pm (Central Time)
August 5, 2022 @ 1:00 - 1:50pm (Central Time)
June 29, 2022 @ 12:00 - 17:10pm (British Standard Time)
June 29, 2022 @ 12:00 - 17:10pm (British Standard Time)
April 19th, 2022 @ 3:00 - 5:00pm (Eastern Time)
April 19th, 2022 @ 3:00 - 5:00pm (Eastern Time)
12-1pm PT / 3- 4pm ET: The Intersection of Autism, Health, Poverty and Racial Equity
Presented by Kristy Anderson, PhD, Scientist, AJ Drexel Autism Institute and Lindsay Shea, DrPH, MS, Director, Policy and Analytics Center, AJ Drexel Autism Institute AIR-P Node Leader, Health Systems and Services.
This presentation will outline findings from our recent National Autism Indicators Report about health and healthcare at the intersections of autism, poverty, and race and ethnicity. Using intersectionality as a conceptual lens, this report leverages population level data to provide a more nuanced description of disparate health and healthcare outcomes among autistic children.
1-2pm PT / 4-5pm ET: Why Studying Puberty in Autism Research Matters
Presented by Jenny Mai Phan, PhD, Postdoctoral Research Fellow, University of Wisconsin-Madison, Waisman Center
This webinar will detail current state of research on puberty and autism. Dr. Phan discusses strategies for studying puberty in autism research and how to address current gaps within developmental science.
February 24th, 2022 @ 1:00 - 3:00pm (Eastern Time)
February 24th, 2022 @ 1:00 - 3:00pm (Eastern Time)
The Scientist Action & Advocacy Network (ScAAN) is hosting a virtual panel with the goal of bringing together experts in a range of disciplines that do important work with and for the neurodivergent–particularly autistic–community.
Topics to be discussed include:
Ableism & eugenics in current scientific research and public health policy
The importance of collective, first-hand experience and wisdom in scientific knowledge-building
Community-Based Participatory Research and what that can look like in neuroscience & psychology
Shifting neurodevelopmental research from its ableist and eugenicist foundations to frameworks
that directly address the true needs and interests of the disabled community
January 20-21, 2022 @ 3:00 - 5:00pm (Eastern Time)
January 20-21, 2022 @ 3:00 - 5:00pm (Eastern Time)
This two-day workshop hosted by the National Science Policy Network DEI Committee is proud to have Andrew Fang and Katharine Mach discuss their respective areas of expertise on environmental justice science and policies. Adriana Bankston will be teaching attendees how to write science-policy position papers or op-eds.
Environmental justice topics include:
Displacement, especially of BIPOC, low-income, LGBTQ communities (i.e. what it does to housing and education availability and accessibility)
Consequences to public health (i.e. exposure to toxic chemicals, mental health)
How policies can widen the disparity gaps in marginalized communities (i.e. policies being implemented from a privileged lens, failure to provide proper aid/distribute funds appropriately)
Food security (i.e. how these disasters change landscapes)
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